Kindred supports over 800 families of children with additional needs every year. Each child is unique, each family has its own story to tell. These case studies share the stories of just a few of the families that Kindred have been privileged to work with. You can also find more quotes from parents and professionals that we’ve worked with here. Lauren and her trike When Lauren was two she had an accident leading to brain injury. As a result she has quadriplegic motor impairment, requires peg feeding and has a tracheotomy. Kindred have been supporting her family as they try come to terms their shock and ongoing grief for what has happened whilst also caring for Lauren’s younger brother. With medical advice given to the family about the 18 month “golden time” for rehabilitation, the family had extra pressure to do all they could for Lauren: read more about how Kindred is helping them to cope with that pressure and adjusting to life caring for a child with complex needs. “Lauren and her family have been through so much in recent months. It has been a pleasure to support their efforts to maximise Lauren’s potential and improve her quality of life” Jennifer, Kindred in Glasgow. Billy and his garden Six year old Billy just loves being outdoors and spending time in the garden. His Mum called Kindred to ask for help funding a fence to make their front garden secure as their house sits directly next to a main road. They had been let down by their housing authority to carry out the work, and Mum was struggling to find somewhere that would help with funds. Billy’s Autistic Spectrum Disorder means the families daily lives are dictated by his needs: during this time Mum had to make a decision to not allow the front door to be used as the garden was not secure enough for him, something that impacted on the whole family, including his two siblings. Kindred managed to find funding that meant a proportion of the garden fence was paid for. This completely transformed the family’s life, it meant not only could Billy explore his own garden in safety, but it meant the family could use their own front door for the first time in ages. “Joanne, thank you for the huge effort to help us get the fence. My son’s life is a brighter place today. Although he can never take off his Autistic hat, he can put on his sun hat and gardening gloves and water the plants in the sun. If he only knew he IS the sun to me and the moon and the stars!” Mum to Billy, supported by Edinburgh’s Helpline Project. Baby Frazer spending time with family Frazer Orr was born with a double aortic arch that started to compress his windpipe when he was five weeks old, leading to an emergency admission to the Royal Hospital for Sick Children in Edinburgh, where he spent the first 18 months of his life. After getting a tracheostomy he was still unable to breath on his own and required a stent to keep his windpipe open. Whilst all this was happening the family were supported by Kindred with things like applying for benefits and discharge planning procedure: things that allowed Frazer’s parents to spend more precious time with him and to be able to better cope with the ongoing demands of family life for his siblings. You can read more about what happened next for Frazer and how a new surgical technique was named after him. We are happy to report that Frazer is doing well and enjoying life with his family. “You never expect your child to be seriously ill in hospital, or for that matter to spend 18 months in hospital. Your life is turned upside down… fortunately we were able to get help and advice from our Kindred contact, which meant we could spend more time at our son’s bedside and be less stressed “ Sandy Orr, dad to Frazer, supported by Kindred at the Royal Hospital for Sick Children. Max enjoying his hobbies Max’s family first worked with Kindred when he was two. As a fun loving and cognitively able boy his family wanted to access whatever therapies they could to help him enjoy life despite the challenges his Dystonic Cerebral Palsy presented. Firstly we were able to work with the family to help pay for a programme of regular therapy at an independent facility, which his mum felt made a huge difference for him. The following year we secured funding for hippotherapy, a type of physiotherapy on horseback, which is excellent for improving core strength. You can read more about Max’s story here. “…we only had barriers until Kindred helped us get funding. They helped Max achieve his full potential and more crucially have fun. Max loves his hippotherapy – he has fun, it’s a hobby, and does not even know it’s helping him build core strength. Max can even shout Flynn, his horse’s name. He can’t stop smiling as soon as we arrive …” Max’s mum, supported by Kindred in Glasgow. Jude getting out and about Jude is a lively, happy three year old who has Brittle Asthma. This means he suffers life-threatening attacks that have had consequences for his whole family. Traci, his mum and a single parent, had to give up work to be at emergency hospital admissions and follow-up appointments. Kindred first met Traci when she desperately needed financial assistance to get home after one discharge: she had been told not to travel by public transport to avoid infection but did not have money for a taxi. Kindred were able to assist with this and then help her become more financially secure by applying for Disability Living and Carer’s Allowance. Jude’s younger sister, unsettled by the crisis around Jude’s health , needed another focus to help her relax and build her confidence: Kindred were able to arrange for her to meet other siblings of seriously ill children at a play camp where she could have fun and get lots of attention. You can read more about Jude’s story here. “You have been a great help in the hospital. I would not have coped without you” Traci, Jude’s mum, supported by Kindred at the Sick Kids in Edinburgh.