Kindred is looking for parents of Exceptional Families to help create a charter for Professionals.


Over the years families have been asked what their concerns are and the Exceptional Families Project (EFP) was established to give added ‘voice’ to these issues and concerns. Clear themes have emerged over this time and the project wishes to invite professionals working with families of children with complex or exceptional health care needs to sign up to a charter of best practice.

The EFP want to identify the top 6 messages that families wish professionals to listen to and demonstrate in their work with parents, children and young people.

We want to promote what works well, what good practice is out there and use the charter as a way to support ‘good practice becoming common practice’. Tell us what positive experiences you have had by selecting up to 6 key messages.

It might be easier for you to think about what has not worked well – you can share this and we will use it as the basis for positive practice e.g. “no one listens to what I say about my child’s usual temperature” will become “always ask me what is usual for my child before deciding with me on the best intervention”.

Please click on the linked document, download, complete with what you think is important for professionals to hear and then email your saved document to: by the 19th April 2018.

The steering group are meeting on the 23rd April 2018 to look at your messages and to produce a draft charter for consultation.