Exceptional Families is a partnership between Kindred Advocacy and the National Managed Network for Children with Exceptional Healthcare Needs

 

It has been funded by the Big Lottery Fund for two years and will reach out to 600 families of children with exceptional healthcare needs in Scotland.

Children with exceptional health care needs require ventilation and/or parenteral feeding. The full criteria can be found here on the CEN website.

We will be providing regional information events.

The project will also offer the opportunity to engage with and influence national policy developments through CEN/NMCN.

For regular updates please sign up to our quarterly newsletter by emailing [email protected] or calling our Exceptional Families team on 0141 427 2738.

Claire Edwards, external consultant for the project, with her son Joe. Read Claire’s introduction to the project here.

More about CEN



CEN was launched in March 2009 with the aim of strengthening specialist services for children with complex and exceptional healthcare needs in Scotland.

The Children with Exceptional healthcare Needs (CEN) is a National Managed Clinical Network with the aim of strengthening specialist services for children with complex and exceptional healthcare needs in Scotland. They work collaboratively with staff from health, social work, education and the voluntary sector to share good practice and improve services and enable joint working between healthcare professionals CEN and families

There are currently over 1,500 people involved in the network.  Kindred has been closely involved with CEN for the last seven years, with representation on the Steering Group and presenting at the national conferences.

 
Please visit the CEN website to learn more about what the network offers: www.cen.scot.nhs.uk
Website: http://www.cen.scot.nhs.uk/
Contact by Email to: [email protected]
Or call them: 0131-275-7612

Suzie and Jennifer, Kindred Advocacy Workers for the project

In partnership with:



 

We gratefully acknowledge the support of the following funder: