The project steering group took a break over the summer but will be meeting again in September. Unless we get new funding the project is due to end in November. Part of Claire Edward’s role, as the ExFP External Consultant, is to provide a final report for our funders, the Big Lottery. Some of that report will be shared in a final newsletter at the end of the year.

A focus for the steering group has been the development of a charter celebrating best practice in supporting and working with families. We will be producing a final draft at our next meeting and this will be promoted across various networks and available as a leaflet to download.

Over the summer Claire has continued to meet with a number of individual parents, mainly in Edinburgh and Glasgow but hopes to get further afield in the next few months. As ever, she tells us she is always touched by the generosity of parents in sharing their experiences.

Kindred’s Glasgow office has now closed but Kindred staff continue to offer advocacy, emotional support and information via the Helpline to parents of children with Exceptional Healthcare Needs who were supported previously by the Glasgow Team. Exceptional Families come from all over Scotland to the Sick Kid’s in Edinburgh and the Kindred hospital team offer both practical and emotional support to parents and children on the wards.

 

Support for Exceptional Families continues to be provided from our Helpline and Royal Hospital for Sick Children (Edinburgh) Teams