Our Helpline team is based at our head office in the West End of Edinburgh and is managed by Kathy, with support from Mhari.  The team answer around 500 enquiries every year from families and with such a high volume of telephone calls you may find that the phone is answered by Barbara, AnneMel, or Sophie.

Our Helpline can provide information and support on a wide range of subjects including:

The staff have a wealth of knowledge for you to tap into and every response is tailored to your individual circumstances.  If we don’t know the answer, we will find out who to ask.

The Helpline team can also offer a block of 5 free counselling sessions to parents whose children are the The Royal Hospital for Sick Children in Edinburgh, on either an inpatient, or outpatient basis.

Please contact our Helpline on: 0800 031 5793 (Choosing option 1, then option 1 again) or by emailing: [email protected]

Kathy, our Helpline Manager, in Edinburgh

Kathy, our Helpline Manager.


We gratefully acknowledge the support of the following funders: